Join us in the fight against Late Infantile Batten Disease

TotalTek is partnering with the Grabczyk-Ilse family for our annual golf outing held on June 20 2022, at The Legends Club. Consider a sponsorship opportunity that will allow you to promote and build your brand while giving back to the community by helping serve those who battle Late Infantile Batten Disease.

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Sponsorship opportunities include

Hole sponsorships

Would you like to showcase your company or product offerings? Signing up for a hole sponsorship will allow you to set up a display area on a single hole and provides an opportunity to interact and expose your company to all 100 golfers. If you are feeling adventurous, you can create your own prize contest (wheel of fortune, rolling dice, etc.) if you like. Sponsorship would be mentioned in day of outing communications. Just $2000 to sponsor a hole! You have the option to provide a prize as well and are encouraged to promote your brand.

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Prize packages

Want your company to be celebrated? Provide an item to be used as a prize for our tournament games, in a raffle or at our silent auction! – we would appreciate company items, travel or local experiences, golf merchandise, gift certificates or other attractive items to delight our golfers!

If donating a prize, please complete a Prize Donation Form and return it NO LATER THAN May 1.

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To participate please click here

All sponsorship proceeds benefit this year’s partner, Harlowe Grace Ilse. On April 2nd, 2021, Erica Grabczyk and Ryan Ilse’s amazing three-year-old daughter Harlowe was diagnosed with Late Infantile Batten Disease (CLN2).

Batten disease is an extremely rare and devastating genetic neurological disorder that effects every aspect of a child’s life. As Batten progresses, children suffer cognitive impairment, progressive loss of vision, hearing and motor skills, and eventually dementia. Life expectancy for children with Batten is 6 to 12 years.

Luckily, there is a treatment available for this type of Batten disease – a treatment that will continue throughout the entirety of Harlowe’s life. While this treatment is not a cure, your participation in sponsorships from this golf outing will be used to help give Erica and Ryan the hope of slowing the effects of Batten disease until a cure can be found.

A sincere thank you for your consideration!

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